My research expertise is in palliative and end of life care. I am a nurse by background. I have two main research interests: the way that palliative care is provided especially within primary and community care settings; and the experience of symptoms at the end of life. Current or recent projects: the experiences of those receiving immunotherapy (2022-25), establishing a palliative care research network across NWC England (2021-25), the NIHR funded Palliative and End of Life Care Policy Research Unit (2024-2026), and Horizon Europe funded projects I-CLEAR (2024-2028) and In-Touch (2024-2028) . I am also interested in research methods and dissemination, and am editor in chief of the journal 'Palliative Medicine'.

Current and recent projects include:

• Horizon Europe funded ICLEAR exploring a new intervention for those with advanced COPD with Prof Nancy Preston, led by colleagues from VUB in Belgium, and with a pan-European Consortia. 
• Horizon Europe funded In-Touch exploring care for those with advanced dementia with Prof Nancy Preston and led from colleagues at University College Cork, with a pan-European consortia. 
• The NIHR funded Palliative and End of Life Care Policy Research Unit with with Prof Nancy Preston and led by colleagues from King's College London and Hull/York Medical School. 
• Developing a palliative care network across NWC England funded by NIHR with colleagues from Universities and clinical organisations across North West Coast. 
• Exploring the experience of receiving immunotherapy for those with advanced cancer (NWCR) led by Prof Sarah Brearley
• CovPall: Understanding the response of specialist palliative care services to COVID-19 with Prof Nancy Preston and led by colleagues from King's College, London. 
• mySUPPORT: implementing a comfort care booklet for people with dementia in nursing care homes (funded by Alzheimer's Society) with Prof Nancy Preston and led by colleagues from Queens University, Belfast. 

• I also supervise a number of PhD students following a traditional route PhD and on the PhD in Palliative Care programme.

Providing excellent and appropriate care at the end of life is critically important not only to those with life-limiting illness, but also to informal and professional carers.  This is a major issue, as it is estimated that around 63% of those who die will require palliative care at some stage during their illness. Research into all aspects of palliative care provision is vitally important, to provide appropriate evidence to support care decisions. Whilst there has been research in this field for a number of years now, there are still many unanswered questions as the evidence base remains small, possibly as a result of the poor funding in this area, and the need to develop research capacity. Within the International Observatory on End of Life Care we focus on a number of different areas of research which contribute to developing this evidence base: researching the needs of older people, symptom management, evaluating service models, and our overarching theme of developing research methods to investigate end of life care.

I teach on our internationally recognised PhD in Palliative Care programme. You can see information here on our research group  https://www.lancaster.ac.uk/health-and-medicine/research/ioelc/ and here for information about the PhD programme itself: https://www.lancaster.ac.uk/study/postgraduate/postgraduate-courses/palliative-care-phd/2026/ I am currently the admissions tutor for the programme, and am always happy for people to contact me to discuss the programme. 

I am a Professor of Palliative Care and Co-Director of the International Observatory on End of Life Care, part of the Division of Health Research.  I am also Editor in Chief of the journal ‘Palliative Medicine’. This is one of the premier journals in the field, and is an international multi-disciplinary journal. Palliative Medicine is the research journal of the European Association of Palliative Care. I am a fellow of the Queens Institute of Community Nursing. I became an academic following a clinical career as a palliative care nurse, primarily in community-based settings.